The Autism Society of Washington
Listserve for November 2007 - Week 1
Click on archived listserve posts here:
ASW Mission Statement
The mission of the Autism Society of Washington is to promote lifelong access and opportunities for `ascribes to the Options Policy established by the Autism Society of America.
*** Introductory Comments from ASW
Introductory Comments from ASW
By Patty Gee, M.Ed SLP, ASW President’s Message - December 8th, 2008
The holiday season can be a very difficult time for many children on the Autistic Spectrum.
The sheer chaos that ensues from changes in routine added to the growing anticipation could be a recipe for stress and behavior problems. Strategies that help the child visualize the period may be helpful for some.
Helping children to cope by using visual images.
• Make a timetable – maybe for weeks to begin with and then into day nearer the event. • Use photographs and cut outs from magazines to explain what is happening (stores stocked with cards, presents and such things). • Obtain dates of events from schools and clubs and insert these into the timetable. • Use specific dates for putting up the tree and decorations or baking the cake. Mark off, on the calendar, events as they happen – so the child can progress visually through the time. Some children prefer an actual ‘washing line’ with events pegged on and taken off on completion.
For some, the extra noise, sights and smells of this time of year are just too much – so maybe consider NOT taking the child shopping at this time and allow times every day for the child to ‘chill out’ and be alone and quiet.
Receiving presents can also be problematic. Many do not like surprises and so it can be best to pre-warn the child of what his/her gifts are going to be – relatives may have to be told what to buy.
Practice the art of ‘accepting’ an unwanted gift – Give the child some idea of stock replies to use at this time – ‘Thank You’ - ‘That’s nice’
It may help you to know that many children on the autistic spectrum find this time of year very difficult to understand . Keeping their routine as close to a ‘normal’ day with no school, will help.
Remember you are not alone, living 24-7 with Autism is hard.
SECTION ONE: How to contact ASW and its Chapters
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1.1 AUTISM SOCIETY OF WASHINGTON- STATE OFFICE
Patty Gee - President
1101 Eastside Street SE, Suite B
Olympia, Washington 98501
Office phone: 360-786-1108
Toll free: (888) ASW 4 YOU
Email: info@autismsocietyofwa.org
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1.2
ASW CHAPTER CONTACTS
ASW CHAPTER CONTACTSAutism Society of Washington - Cowlitz/Wahkiakum Counties
Meetings held in Longview; every third Thurs. of the month at 7:00 pm
Sue Culbertson 360-423-4012
www.autismsocietyofwa.org/ASW-CWC.html
Autism Society of Washington – Spokane
Meetings held in Spokane; meet the third Wed. of each month
Kathleen Stimple 509-624-3323
Email: spokane@autismsocietyofwa.org
www.autismsocietyofwa.org/ASW-SC.html
Autism Society of Tacoma
Meetings held near the Tacoma Community College; 4th Tues of each month
Christina Boutiette 253-759-7995
Email: astpc@autismsocietyofwa.org
www.autismsocietyofwa.org/AST.html
Thurston/Mason Counties - Autism Society of WA
Meetings held in Olympia; meet the second Tues. of each month
Patty Gee 360-754-2584
Email: PattyJGee@comcast.net
www.autismsocietyofwa.org/ASW-TMC.html
Autism Society of WA - Tri-Cities Chapter
Meetings the 3rd Thursday of each month
(The Neurological Resource Center)
712 Swift Blvd, Suite 1, Richland, WA
Terry Buck 509-374-2120
Dana Tolick 509-946-0619
Email: danatolick@hotmail.com
www.autismsocietyofwa.org/ASW-TCC.html
Autism Society of Grant County
Mike Scellick 509-754-4300
Email: asgc@autismsocietyofwa.org
www.autismsocietyofwa.org/ASGC.html
Autism Society of Yakima
Erin Lynch 509-961-0700
Email: asy@autismsocietyofwa.org
www.autismsocietyofwa.org/ASY.html
Autism Society of Washington –
White River Chapter
Tami McGrath 253-826-9112
Email: aswwrc@autismsocietyofwa.org
www.autismsocietyofwa.org/ASW-WRC.html
Autism Society of Washington –
Southwest Chapter
Meetings held in Vancouver, Third Sat. of odd numbered months
Victoria Fitzsimmons at 360-896-6169
Email: aswswc@autismsocietyofwa.org
www.autismsocietyofwa.org/ASWSWC.html
Autism Society of King County
Meetings as announced
Angela Dawson at 206-372-0465
Angela_niccole@hotmail.com
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1.3ASW EXECUTIVE BOARD OF DIRECTORS:
ASW EXECUTIVE BOARD OF DIRECTORS: Cori Valley (Past President)
Spokane, WA 99208
Email: corivalley@comcast.net
Patty Gee (President)
Olympia, WA 98501
Email: PattyJGee@comcast.net
Diana Stadden (Vice President)
Tacoma, WA 98409
Email: advocate4autism@cs.com
Marcy McCarthy (Secretary)
Vashon Island, WA 98070
Email: earait@aol.com
Mitch Freedman (Treasurer)
Bellevue, WA
Email: mitchfree@comcast.net
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SECTION TWO: Upcoming Events, Workshops, Conferences
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2.1
Putting Community Connections to Work for Everyone:
The Importance of Belonging
David Pitonyak, PhD
January 9, 2008
Time: 9am to 3:30pm (with one hour lunch – on your own)
Location: Highline Performing Arts Center
401 South 152nd StreetBurien, Washington 98166About the workshop: Being connected other people is critical to our emotional and physical well-being. Many people experiencing our services are sick from loneliness. This workshop is about ideas for moving beyond interventions and coverage to a system that supports enduring, freely chosen relationships, experiences, reciprocity and contribution.
About David: David Pitonyak is interested in positive approaches to difficult behaviors. He believes that difficult behaviors are “messages” which can tell us important things about a person and his or her surroundings. Understanding the “meaning” of an individual’s difficult behaviors is the first step in supporting the person (and the person’s supporters) to change. David has consulted with families and professionals throughout the United States, Canada, England, the Republic of Ireland, Northern Ireland, and the Netherlands. He is the recipient of the 2005 Positive Approaches Award from the Association for Persons with Severe Handicaps (TASH). For additional information visit www.dimagine.com
Cost: There is no charge to attend. This workshop is being sponsored by
Pierce Co. Developmental Disabilities, King Co. Developmental Disabilities and Snohomish Co. Developmental Disabilities
Audience: This workshop is appropriate for educators, family members, service providers, individuals with disabilities, and advocates. Please feel free to share this information with anyone who might have interest. All are welcome.
Clock Hrs: Application for clock hours has been submitted to Puget Sound ESD.
Register: Email name(s) to Teri Johnson at teri@oneillandassociates.com or call Teri at 206-269-0232
Accommodations: The workshop site is wheelchair accessible. Please contact Teri at teri@oneillandassociates.com with other requests for accommodation by 12/24/07.
In case of bad weather – call 206-269-0232 on morning of workshop to check status
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2.2
Advocating for Change Together (ACT)
Workshop schedule:
Jan 25 and 26: Community systems – part 1: education, transition, and employment
Feb 29 and Mar 1: Self determination and self-advocacy
Mar 28 and 29: Community systems – part 2: housing, transportation, recreation, and mental health
April 25 and 26: Systems advocacy
May 31: Graduation ceremony
We invite you to apply for this unique opportunity to become a better advocate for yourself, your family, and other people with disabilities. The ARC of King County is offering a new Leadership Development Program for adults and families of children with developmental disabilities.
For more information and how to apply: www.arcofkingcounty.org/act or contact Mary Jo Magruder at (206) 829-7010 email: mjmagruder@arcofkingcounty.org .
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2.3
Winter Autism Conference
University of San Diego Autism Institute
January 7-9, 2008
This unique conference brings state-of-the-art ideas from national and internation experts on how to better understand and support people who live with autism.
PRESENTERS:
Anne M. Donnellan, Ph.D.
Martha R. Leary, MA, CCC-SLP
Gary W. LaVigna, Ph.D.
Nan Negri, Ph.D.
David Pitonyak, Ph.D.
Additional guest speakers: Individuals with the autism label and parents who are “Autism Bloggers” will discuss the value of blogging for self-advocates, parents, researchers, teachers and others.
Early Registration (before 12/15/07): $295.00
Late Registration (12/16/07 – 1/03/08): $320.00
Cost includes: 2 graduate level extension credits, handouts, breakfast, and snacks.
*This conference can also be part of a 3-unit Graduate Course (towards a Graduate Degree) offered through the USD School of Leadership and Education Sciences. Contact Beth Yemma at byemma@sandiego.edu or autisminstitute@sandiego.edu for further information.
For more information about the conference (directions, parking, hotels, etc.) and the USD Autism Institute please visit ourwebsite at www.sandiego.edu/autisminstitute/
For questions about registration please dontact Continuing Education: 619-260-4585
Any additional questions, contact:
Shannon Harrington
USD Autism Institute
619-260-7705
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2.4
Addressing Challenging Behaviors at Home: Working with Families to Find
Solutions
Class meets on Tuesdays from Jan. 8 to Feb. 5
7-9 pm
FEAT Center
14434 NE 8th St.
Bellevue, WA 98007
$100 per person
Contact nancyr@u.washington.edu
Taught by Gusty-Lee Boulware, Ph.D., BCBA and Nancy Rosenberg, Ph.C., BCBA
Does your child refuse to follow directions? Does he get upset when you make transitions? Does she act but when you "don't let her have her way" or when she can't have something she wants immediately? Does he get react negatively when you change his routine?
If you deal with these or other problem behaviors with your child with ASD, this class is for you. Come participate in a 5-week interactive workshop designed to give you the tools and real world solutions to
address the problem behaviors interfering with everyday life. You will be able to try out strategies and come back the next week and troubleshoot what did or didn't work. You will leave with a "toolkit"
of positive behavior support strategies that you will be able to draw on when new problems arise.
For parents of children ages 3-8
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2.5
Creating a User-Friendly IEP
Regional Autism Network Training
Presented by the Autism Outreach Project
Date: Thursday, January 10, 2008
Time: 1:00 p.m. to 4:00 p.m.
Course No.: AOP 1546NWV
Registration: $35.00 per person
3 clock hours available $11
Locations:
• ESD 101, 4202 S. Regal Street, Spokane
• ESD 105, 33 S. 2nd Avenue, Yakima
• ESD 113, 601 McPhee Road SW, Olympia
• Olympic ESD 114, 105 National Avenue N., Bremerton
• ESD 123, 3918 West Court Street, Pasco
• North Central ESD 171, 430 Olds Stanton Road, Wenatchee
• Northwest ESD, 1601 R Avenue, Anacortes
This course will focus on writing meaningful and compliant IEP’s for students on the autism spectrum. To best meet the needs of these students, we need to move beyond reading, math, and written language to writing goals and objectives that specifically address the core challenges (social, communication, and behavior/sensory) of autism spectrum disorders.
Presenters: Regional Autism Network (RAN) training meetings are facilitated and taught by Regional Autism Facilitator Trainers. Created by Gretchen Schmidt-Mertes, this class will be taught by the Regional Autism Facilitator Trainer in your area.
Regional Autism Network training meetings provide a structured opportunity for educators, families, and community members to learn new information, network, and share resources. Come join us!
Target Audience: Professionals and parents working with children on the autism spectrum.
Ways to register:
Mail registration form with P.O. or check to:
Northwest Educational Service District, 1601 R Avenue, Anacortes WA 98221
Fax in the registration with P.O. or credit card to: (360) 299-4071
Phone in completed registration with your credit card to: 360-299-4082
Register online at: http://www.esd189.org/autism/training.html
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2.6
The Autism Early Childhood Training Series
Presented by Margaret Brashers, Ph.D.
Northwest Educational Service District, 1601 R Avenue, Anacortes, WA
These classes are designed for professionals and parents working with children on the autism spectrum. Dr. Brashers is a consultant at the University of Washington for Project DATA, a program for young children
with autism spectrum disorders, and consults with public school districts, preschools, and elementary schools on providing specialized instruction in inclusive settings.
Topics covered in this four-part series include:
Beginning Part 1: Ten Things Kids with Autism Really Want You to Know
Course No. AOP 1537NWV
January 24, 2008 9 a.m. to 3 p.m.
Beginning Part 2: How to Lose the “Velcroed” Aide
Course No. AOP 1539NWV
February 7, 2008 9 a.m. to 3 p.m.
Intermediate Part 1: What to do When...Dealing with Challenging Behavior
Course No. AOP 1540NWV
March 13, 2008 9 a.m. to 3 p.m.
Intermediate Part 2: How to Teach so that Kids will Talk
Course No. AOP 1541NWV
April 10, 2008 9 a.m. to 3 p.m.
Registration: $85.00 per person per session
5 clock hours available at each class $15
Locations:
Contact Nancy Osterhout for K-20 information at (360) 299-4090 or autism@esd189.org.
Ways to register:
Mail registration form with P.O. or check to:
Northwest ESD, 1601 R Avenue, Anacortes WA 98221
Fax in the registration with P.O. or credit card to: (360) 299-4071
Phone in completed registration with your credit card to: 360-299-4082
Register online at:
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2.7
ABC
“All Behavior is Communication”
Date: Thursday, January 17, 2008
Time: 9 a.m. to 4 p.m.
Course No.: AOP 1542NWV
Registration: $100 per person
6 clock hours available at class $17
Participating Locations:
¨ ESD 112, 2500 NE 65th Avenue, Vancouver, WA, site of origination, and available to K20 locations statewide:
¨ ESD 101, 4202 S. Regal St., Spokane, WA
¨ ESD 105, 33 S. 2nd Ave., Yakima, WA
¨ ESD 113, 601 McPhee Rd. SW, Olympia, WA
¨ Olympic ESD 114, 105 National Ave. N., Bremerton WA
¨ ESD 123, 3918 West Court St., Pasco, WA
¨ North Central ESD 171, 430 Olds Stanton Rd., Wenatchee WA
¨ Northwest ESD, 1601 R Avenue, Anacortes, WA
Presenter: Ronda Schelvan, M.S.Ed., has over 25 years of experience in the field of special education and is an autism consultant and special education teacher in Washougal, Washington. She is co-author of The Hidden Curriculum: Practical Solutions for Understanding Unstated Rules in Social Situations, in addition to having several works in press. Ms. Schelvan is a founding member of the ESD 112 Autism Consulting Cadre in Southwest Washington. She has consulted and presented on topics in autism both nationally and internationally.
Target Audience: Professionals and parents working with children with autism spectrum disorders.
Course description:
This workshop will focus on understanding and implementing behavior management techniques. It will examine the communicative intent of all behaviors, including disruptive outbursts. An overview of the behavior cycle will be presented along with hands-on techniques that deescalate aggressive behavior.
Course Details:
Ways to register:
Mail registration form with P.O. or check to:
Northwest ESD 189, 1601 R Avenue, Anacortes, WA 98221
Fax in the registration with P.O. or credit card to: (360) 299-4071
Phone in completed registration with your credit card to: 360-299-4082
Register online at: http://www.esd189.org/autism/training.html
Additional K-20 sites are available.
If you are interested in becoming a site,
please contact us at: autism@esd189.org
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2.8
Seattle Walk Now for Autism Walker recognition
Friday Jan. 18th from 6:30 to 8:00 p.m.
Community Center at Mercer View, 8236 SE 24th St. on Mercer Island
Thank you for supporting Autism Speaks Walk Now for Autism. We want to honor you and your entire team personally. We will offer light refreshments, such as fruit, small sandwiches and dessert. There will be activities for the children to participate in and awards for every team and individual walker. We will have a slide show of photos from the walk and talk about what the money you raised has already produced in our community. It promises to be a light, fun, informal event for everyone. Please RSVP to Seattle@autismspeaks.org .
Awards
The award incentives have been ordered and if you qualify, you should receive your gifts in the mail before the end of the month. It’s not too late to add to your walk total and qualify for awards. If you raised...
•$250 - $499: You receive a Walk Now for Autism Baseball Cap
$250 - $499: You receive a Walk Now for Autism Baseball Cap•$500 - $749: You receive a Walk Now for Autism Umbrella
$500 - $749: You receive a Walk Now for Autism Umbrella •$750 - $1,499: You receive Walk Now for Autism Polo Shirt.
$750 - $1,499: You receive Walk Now for Autism Polo Shirt. Donations can be made on-line to your team at www.autismwalk.org/seattle before Dec. 31st or mailed to
Autism Speaks
159 Western Ave W #484
Seattle, WA 98119.
At the start of the new year, we will unveil a new and improved website so stay tuned online!
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2.9
Free AUTISM SEMINAR - “The ABC’s of Functional Lab Testing for Children with ASD”
Saturday, February 16, 2008
1:00pm-4:00pm
Location:
Hannah S. Grunbaum Conference Center
1625 19th Avenue, Seattle, WA 98122
SPEAKER: Dr. Hatha Gbedawo - Naturopathic Physician
1 of 150 children is diagnosed with autism. If you are
a parent, grandparent, therapist, caregiver, medical
professional, etc. you do NOT want to miss this!
FREE
To register, please call LindaBrozanic at 1-800-288-0383
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2.10
You Are The Expert Conference 2008
"Celebrating Families and Professionals, The Heart of Success"
April 4 - 5, 2008
Lynnwood Convention Center
3711 196th Street SW
Lynnwood, WA 989036
This is a wonderful opportunity for connecting with other parents and professionals: Gain New Ideas, Share your Knowledge and Experience . . . and Have a Great Time!
Cost: $125.00 per person for adults, free to youths 18 or younger attending with and adult. Includes breakfast and lunch both days, reception and silent auction Friday evening and youth dance Friday night.
To register go to:
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2.11
2008 ASA National Conference, July 9-12, at the Gaylord Palms
Resort & Convention Center, in Orlando, Fla.
Mark Your Calendars!
Sponsorship & Advertising Opportunities
Think about supporting the 2008 ASA National Conference as a sponsor
or an advertiser. These spots go fast. With nearly 2,000 attendees
anticipated at the conference from around the US and internationally,
it's a great way to reach the autism community. For more
informati on, go to www.autism-society.org/conference and click on
"Exhibitor Information" to see the Sponsorship and Advertising
opportunities. Read more:
Exhibitors
If you're interested in exhibiting at the 2008 ASA National
Conference, please visit www.autism-society.org/conference or call Meg
Ellacott, ASA's Exhibit Sales Director, at 302-260-9487. To date, over
45 percent of the available exhibit floor space has already been sold,
so you'll want to take action today. Read more:
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FOCUS TOPICS/ARTICLES OF INTEREST
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3.1
Top Ten Things to Consider When Buying Toys for Children with Disabilities
The National Lekotek Center
Holiday time is exciting for all children, and children with disabilities are no different. There are nearly 6 million children with disabilities (including 12.7% of school children) who will receive holiday gifts this season. Yet because gift givers are afraid of selecting the "wrong" toy, many children with disabilities find pajamas and socks wrapped up in those brightly-colored boxes. Not the toy of their dreams.
The National Lekotek Center recommends the following Top Ten Things to Consider When Buying Toys for Children with Disabilities:
1.Multisensory appeal: Does the toy respond with lights, sounds, or movement? Are there contrasting colors? Does it have a scent? Is there texture?
Multisensory appeal: Does the toy respond with lights, sounds, or movement? Are there contrasting colors? Does it have a scent? Is there texture? 2.Method of activation: Will the toy provide a challenge without frustration? What is the force required to activate? What are the number and complexity of steps required to activate?
Method of activation: Will the toy provide a challenge without frustration? What is the force required to activate? What are the number and complexity of steps required to activate? 3.Where toy will be used: Can the toy be used in a variety of positions such as side-lying or on wheelchair tray? Will the toy be easy to store? Is there space in the home?
Where toy will be used: Can the toy be used in a variety of positions such as side-lying or on wheelchair tray? Will the toy be easy to store? Is there space in the home? 4.Opportunities for success: Can play be open-ended with no definite right or wrong way? Is it adaptable to the child's individual style, ability and pace?
Opportunities for success: Can play be open-ended with no definite right or wrong way? Is it adaptable to the child's individual style, ability and pace? 5.Current popularity: Is it a toy most any child would like? Does it tie-in with other activities like T.V., movies, books, clothing, etc?
Current popularity: Is it a toy most any child would like? Does it tie-in with other activities like T.V., movies, books, clothing, etc? 6.Self-expression: Does the toy allow for creativity, uniqueness, and choice-making? Will it give the child experience with a variety of media?
Self-expression: Does the toy allow for creativity, uniqueness, and choice-making? Will it give the child experience with a variety of media? 7.Adjustability: Does it have adjustable height, sound volume, speed, level of difficulty?
Adjustability: Does it have adjustable height, sound volume, speed, level of difficulty? 8.Child's individual characteristics: Does the toy provide activities that reflect both developmental and chronological ages? Does it reflect the child's interests and age?
Child's individual characteristics: Does the toy provide activities that reflect both developmental and chronological ages? Does it reflect the child's interests and age? 9.Safety and durability: Consider the child's size and strength in relation to the toy's durability. Is the toy and its parts sized appropriately? Does the toy have moisture resistance? Can it be washed and cleaned?
Safety and durability: Consider the child's size and strength in relation to the toy's durability. Is the toy and its parts sized appropriately? Does the toy have moisture resistance? Can it be washed and cleaned? 10.Potential for interaction: Will the child be an active participant during use? Will the toy encourage social engagement with others?
Potential for interaction: Will the child be an active participant during use? Will the toy encourage social engagement with others? "With thousands of toys on the market, it is hard for parents to know which types of toys are good matches for their children," says Beth Boosalis Davis, Executive Director of the National Lekotek Center. "We have received thousands of requests from parents asking us to help them identify those toys that will bring success rather than a sense of frustration to their children. This Top Ten List should give parents and their family members more confidence when they go to the stores to make their toy purchases." The National Lekotek Center leads the way for accessible play for children with disabilities and their families through a nationwide non-profit network of 62 play centers, toy lending libraries and computer play programs. For more information, call the Lekotek Toy Resource Helpline: 800-366-PLAY. CONTACT: Diana Nielander of National Lekotek Center, 847-328-0001 EVANSTON, Ill., Dec. 4, 1997
________________________________________
More Toy Links:
Adapt the toy to the child! Remember to shop for popularity and age appropriateness
Toys for Children with Disabilities
Independent Living Technologies
Adaptation: Making Toys and Games Fun for All
Differently Abled
Ideas for fun toys that also help teach skills.
Gifts For Children With Learning, Physical Disabilities
Tips on shopping for children with special needs.
http://video.wnbc.com/player/?id=190414 Doesn't stress age appropriate, but otherwise is very positive video.
Scholastic Store
Links to Tips for Selecting and Adapting
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3.2
Pentagon looks to meet needs of autistic kids
12/01/07 - By Gayle S. Putrich, Army Times
The Pentagon needs help from military families with autistic children to create a new segment of its Extended Care Health Option (ECHO) program.
Under the 2007 Defense Authorization Act, Congress is requiring the Defense Department to create a new action plan under the existing ECHO program to provide more and better services for families with autistic children.
Tricare officials are now reaching out to such families for suggestions on what kind of education, training and supervisory requirements caregivers should have. Input is also needed to help set standards for caregiver training and ways to ensure children on all points of the autism spectrum receive the care they need though Tricare and ECHO programs in concert with other publicly provided services.
Any military family members with suggestions can email the Tricare Management Activity at ChildrenWithAutism@tma.osd.mil through the end of 2007.
"It is vital we learn about affected beneficiaries and their personal experiences, so Tricare may better meet their needs," said Army Maj. Gen. Elder Granger, deputy director of the Tricare Management Activity. "We look forward to expanding available treatment options and access to care for beneficiaries with autism."
Autistic children in military families currently are covered for only a handful of treatments, including Applied Behavioral Analysis. Tricare covers up to $2,500 of the hands-on therapy, with a co-pay, as long as the treatment is administered by a certified provider who meets qualifications.
Uncertified caregivers are not covered, even if properly supervised. Tricare will share the cost of training if a family member wants to become certified.
According to the Autism Society of America, one in every 166 children is born with some form of autism, considered the "fastest-growing developmental disability" in the U.S., up 172 percent since 1990.
But researchers also say that early diagnosis and intervention can cut the lifelong cost of care for those with autism by two-thirds.
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3.3
The Case for Autistic Enterocolitis
Dr. Arthur Krigsman's Recent Northwest Lecture Added to Autism.com
Arthur Krigsman, M.D. of Thoughtful House for Children visited the Pacific Northwest last weekend presenting lectures about Autisitic Enterocolitis in Seattle and Portland. A video recording of the event - rendered in both high band (DSL, cable) and low band (dial-up) - is now available online for free on ARI's web site.
To view the video:
Go to www.autism.com - the new video link is located on the far right column on the homepage.
Dr. Krigsman has extensive experience in the evaluation and treatment of gastrointestinal pathology (now known as autistic enterocolitis) common in children with autism spectrum disorders (ASD), and has detailed the symtomatology and endoscopic/histopathologic character of this disease in this unique, poorly understood group of children. His findings have been presented at scientific and lay meetings in the United States and Canada.
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3.4
Autism Study Lends Credence to 'Fever Effect'
by Jon Hamilton
For the first three years of his life, Rene Craft's son, Jackson, communicated primarily through screaming tantrums. He never spoke. He didn't point to things. He didn't make eye contact. He had the classic signs of severe autism.
Then a couple of years ago, Jackson got sick. His mother, Rene Craft, says he was running a high fever.
"He was lying in our bed, and he was recovering," Craft says. "And he said out of the blue, 'I like the sheets, Daddy. They're really comfortable.' And then later that day he looked out the window and he said, 'Oh, it's raining, and squirrels eat nuts."
To read full article visit http://www.npr.org/templates/story/story.php?storyId=16956039&sc=emaf
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3.5
Fever Unlocks Autism's Grip, Study Shows
By Michael Conlon,
Reuters
Posted: 2007-12-03 16:59:01
Filed Under: Health News, Science News
CHICAGO (Dec. 3) - Fever can temporarily unlock autism's grip on children, a finding that could shed light on the roots of the condition and perhaps provide clues for treatment, researchers reported on Monday.
It appears that fever restores nerve cell communications in regions of the autistic brain, restoring a child's ability to interact and socialize during the fever, the study said.
"The results of this study are important because they show us that the autistic brain is plastic, or capable of altering current connections and forming new ones in response to different experiences or conditions," said Dr. Andrew Zimmerman, a pediatric neurologist at Baltimore's Kennedy Krieger Institute, who was one of the study authors.
The study, published in the journal Pediatrics, was based on 30 children with autism aged 2 to 18 who were observed during and after a fever of at least 100.4 degrees Fahrenheit.
More than 80 percent of those with fever showed some improvements in behavior during it and 30 percent had dramatic improvements, the researchers said. The change involved things like longer concentration spans, more talking, improved eye contact and better overall relations with adults and other children.
Zimmerman's team said the fever effect had been noted anecdotally in the past by parents and doctors.
Lee Grossman, president and chief executive officer of the Autism Society of America, said he had noticed it in his own son, who is now 20.
But he noted in an interview that the study's authors said expanded research was needed on the fever effect and its implications. "It's good that they've noticed this and are bringing it forward," he said.
People with autism spectrum disorders suffer in varying degrees from limited social interactions, lack of verbal and non-verbal communication and other abilities.
As many as 1.5 million Americans have some form of autism, according to ASA. It is not known what causes the condition.
Zimmerman said that while there currently is no definitive medical treatment, speech and language therapy started as soon as possible after diagnosis "can make a significant difference."
He called the fever research, headed by colleague Laura Curran, "an exciting lead" that could help point the way to a treatment that would reconnect the autistic brain. He said the fever effect was believed found only in children, whose brains are more "plastic" than those of adults.
Copyright 2007 Reuters Limited. All rights reserved. Republication or redistribution of Reuters content, including by framing or similar means, is expressly prohibited without the prior written consent of Reuters. Reuters shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon. All active hyperlinks have been inserted by AOL.
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3.6
SACRAMENTO
Autism research
Updated: Nov 23, 2007 10:01 PM EST
Just two hours west of Just, there is a place that is giving a lot of hope to children with autism and their families. It's called the U.C. Davis Mind Institute.
News 4 took a trip to this research center in News 4 too to see what's being done there and get some answers to tough questions from experts. As the numbers of children with autism in the As the number grow, there is an intense effort underway to find answers quickly. The Mind Institute which stands for Medical Investigation of Neuro-Developmental Disorders is world-renowned. It's a "think tank" of 250 experts from all different specialties under one roof.
Executive Director Bob Hendren answers the questions we wanted to know the answer to, what causes autism?
"The truth is we don't know," Hendren. "And it's probably not as simple as one thing."
Hendren says based on years of research, it's probably a combination of things. Studies show genetics, some type of weakness in the immune system and environmental factors all play a role. What those environmental factors are specifically is not known. Things like pesticides, early childhood vaccinations
and toxins are all being looked at here.
To view full article visit http://www.krnv.http://www.http://wwwhttp://ww&ClientType=PrintablC_
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3.7
Clinton Unveils Autism Plan
By AMY LORENTZEN
SIOUX CITY, Iowa (AP) - Democrat Hillary Rodham Clinton on Saturday pledged to help autistic families by boosting funding for research and education to $700 million a year.
"Driven by their love and devotion, mothers and fathers across the country have raised awareness, demanded funding, and opened our eyes to the needs of so many children," she told a crowd of hundreds gathered at the Jesse E. Marshall Boys Club of Sioux City. "It's up to us to reclaim the future for our children, and ensure that every child can live up to his or her God-given potential."
She said when it comes to autism, "we don't know how to cure it, and we don't even know the best ways to treat it."
"I think it's time we had a government and a president who recognized the seriousness of autism and addressed it head-on," Clinton said.
The number of autism diagnoses has risen from one in 10,000 in 1993, to one in 150 in 2007 - or about 25,000 children diagnosed with autism each year, Clinton said. She called the disorder a national health crisis, saying it costs the nation at least $35 billion each year.
Clinton outlined her years helping children with autism, including co-sponsoring legislation called the Combating Autism Act in 2006, and earlier this year the Expanding the Promise for Individuals with Autism Act. She criticized President Bush for refusing to fully fund such efforts.
If she's elected, Clinton said she would also take other autism initiatives including:
_ Expanding research to identify the causes of autism, including potential environmental reasons.
_ Improving education and early detection and intervention, including creating a task force to investigate autism treatments and services.
_ Training for teachers to instruct children with autism.
Lee Grossman, president and CEO of the Autism Society of America, said the investment America makes in early identification, services and support "will create opportunities for these individuals to contribute meaningfully in our society - as is their right."
"Senator Clinton's plan is a very important step in that direction," Grossman said in a statement provided by Clinton's campaign.
Clinton used the opportunity to talk about health care. She said families dealing with conditions such as autism find that "often times insurance is so expensive you can't afford it, or the insurance doesn't cover the very thing you need it for."
The universal health care plan she's proposed would help all families, including those dealing with autism, to afford quality health care - as good as what members of Congress are getting, she said.
"Parents will no longer be burdened by unmanageable premiums just because their children have autism," Clinton said.
At a firehouse later in Sac City, a woman asked Clinton about relations with Iran.
The New York senator defended her vote earlier this year to dub the Iranian Revolutionary Guard a terrorist organization. She said the vote was made to kick-start diplomatic talks and drive economic sanctions against the guard, which she said "is deeply involved in all of the commercial activity in
Iran."
Clinton has been criticized by some of her rivals for her support of the resolution, which they said could lead to war. Clinton said that's not the case.
"It's very important that we prevent President Bush from trying to take this country to war against Iran," she said.
She said that since the sanctions were imposed, talks have resumed with Iran and the Iranians have curbed sending agents and explosives into Iraq.
"I believe a contributing factor to the Iranians backing off is getting tougher on the economic sanctions agenda against the Iranian Revolutionary Guard," she said.
ClintonUnveils Autism Plan
The Associated Press -
She said when it comes to autism, "we don't know how to cure it, and we
don't even know the best ways to treat it." "I think it's time we had a
government ...
UDc5B0CfV6dSXJfBApWT3EiCCAD8T4CLF00>See all stories on this topic
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3.8
SUBJECT: STATE INTERAGENCY COORDINATING COUNCIL VACANCIES
The Washington State Interagency Coordinating Council (SICC) for Infants and Toddlers with Disabilities and Their Families advises and assists the Department of Social and Health Services (DSHS), the Office of the Superintendent of Public Instruction (OSPI), the Department of Health (DOH), the Department of Services for the Blind (DSB), and the Department of Early Learning (DEL) in implementing the Infant Toddler Early Intervention Program per the federal requirements of the Individuals with Disabilities Education Act (IDEA), Part C. The SICC is mandated by IDEA, Part C and established through the Governor’s Executive Order 01-04. A copy of the Executive Order is attached. The Governor appoints the
members of the Council.
Applications are currently being sought to fill the following vacancies on
the Council
§ Parent
§ Service Provider – School District
§ Personnel Preparation
§ Personnel Preparation – Higher Education
Interested persons are encouraged to apply. Please submit the attached Gubernatorial Application, SICC Application, and a resume by December 10, 2007 to DSHS, Infant Toddler Early Intervention Program, Post Office Box 45201, Olympia, Washington 98504-5201.
If you know of someone who is interested, please also share this information with them. The Governor, the Department of Social and Health Services, and the Infant Toddler Early Intervention Program are interested
in assuring the Councils’ diversity and gender perspectives on the Council. Your assistance to help us recruit membership would also be appreciated.
If you have any questions, or need assistance in completing the application, please contact Linda Jennings, at (360) 725-3514, or email to jennill@dshs.wa.gov
Thank you for your interest in the SICC.
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3.9
Here is a brand new release of a fantastic documentary about Inclusion made by Dan Habib-INCLUDING SAMUEL. Dan is the father of a young boy with cerebral palsy. In the film Dan explores the challenges and benefits and effort it takes to fully include his son Samuel in all aspects of life. He also highlights other individuals and families dealing with various challenges- including Autism. It is a touching, humorous and thought provoking piece. The film has opened to huge crowds and you are sure to hear much more about it.
Please see more at: www.includingsamuel.com
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3.10
Nov 20, 2007 04:30 AM
Trish Crawford
Jean Winters fears what could happen to her autistic son when she is dead.
"We're not going to live forever," says Winters, 53, of Toronto.
It takes five people - Winters, her husband, ex-husband, younger son Adam Glen, 17, and a paid caregiver - to watch over Alec Glen, 21, who needs constant supervision.
She wants to get Alec on a waiting list for residential placement in the next few years, and has arranged for a trust fund for him and a trustee to handle his affairs.
Non-verbal and unafraid, Alec is in danger of both hurting himself and being harmed by others, Winters says.
"All the way through school, there would be bruises," says Winters, remembering. "Alec wouldn't say what happened."
Concern for his future "haunts me," she says.
This parent's dilemma is shared by thousands who have raised children with disabilities and find their responsibilities continue into the child's adulthood - and beyond their own deaths.
The importance of making a good plan for the future was highlighted in an Ontario courtroom a few weeks ago with the manslaughter trial of Allison Cox into the starvation death of her autistic sister, Tiffany
Pinckney.
Court heard that Cox took over the care of Pinckney after their mother's death. Assistance set up for Pinckney, the trial learned, was rejected and the 23-year-old died in the basement of her sister's Mississauga home, emaciated and covered in feces.
Crown prosecutor John Raftery told the Star that "it is not a frequent thing" for a caregiver to face a manslaughter charge.
After the judge's verdict in the Pinckney case, expected in January, Raftery intends to call a meeting of witnesses from the various agencies who dealt with Pinckney during her life. Although the crown's
involvement ends after the trial, Raftery says a meeting would focus on issues raised by the case and also explore interest in further action.
Community living leaders are already talking about pushing for laws to protect vulnerable adults in Ontario. Mary Rothman, spokesperson for the Community Living Association of Nova Scotia - the four Maritime provinces have such laws - says most cases currently involve elderly people.
Keith Powell, executive director of Community Living Ontario, says the proposed legislation would improve the ability of workers involved with intellectually disabled adults to investigate - and report - if services are rejected, as they were in Pinckney's case.
The case has made people talk, and think, about the responsibility of larger society to the vulnerable, says Powell, adding that more resources are needed to help those struggling to care for family
members.
"It's not so much who is guilty and who should be prosecuted," says Powell. "It's important the families not be alone, that there are supports and community interest, so that this child isn't a burden."
Gail Jones, director of community supports with Kerry's Place Autism Services, who met Pinckney a few times, remembers her as having "a good sense of humour. She liked to go out to the park."
Shocked by her death, Jones arranged a memorial service in August, 2005, shortly after charges related to the young woman's death were laid against family members. About 30 people attended the service at the
Rexdale Alliance Church, where Jones gave a speech commemorating Pinckney's life.
"Clearly her life and death have affected us very profoundly, to the point that I believe her death has created a different level of community thought and discussions about the welfare of individuals we
serve," Jones told the service.
There is growing concern about a large increase in the number of disabled adults needing residential care as their parents die. Community Living Toronto lists nearly 300 parents over age 70 who are caregivers
to intellectually disabled adult children. Of those caregivers, 13 are older than 90. All have put their children on the organization's housing list.
Sadly, say experts, those parents might have to die before a placement is found for their children.
Sondra Learn, of Burlington, who has two autistic children, doesn't think she should ask her eldest child Matt, 23, to take on his siblings' care when she dies.
"I don't think it's fair at all. It places a burden," says Learn, 54, a full-time homemaker.
Justin, 21, who has just graduated from high school, was recently diagnosed with multiple sclerosis. He cannot speak but can read and write, says Learn, adding she has put him on a residential waiting list.
Another son, with mild autism, doesn't need extra care.
Learn feels that Matt, who is working and engaged to be married, should be free to live his life without being handed the day-to-day care of his brother. She wants him to be involved in Justin's life but not
responsible for him.
Margaret Spoelstra, executive director of the Autism Society of Ontario, says the death of Tiffany Pinckney "highlights the worst scenario. It is every parent's worst fear for the future."
Society members are deeply troubled by the case, she says. "Parents have lost a little bit of their heart."
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3.11
Detectives Open Death Investigation At Rainier
Chris Halsne
KIRO 7 Eyewitness News Investigative Reporter
POSTED: 3:18 pm PST November 19, 2007
UPDATED: 11:01 pm PST November 19, 2007
SEATTLE -- State Patrol detectives have opened a death investigation after KIRO Team 7 Investigators uncovered new facts surrounding a mysterious fatality at the Rainier School for the disabled.
The Department of Social and Health Services originally ruled the death, earlier this year, as “natural”.
In late August, our investigative team shot videotape of Rainier School workers punching, kicking, and shoving disabled patients. Three state employees were arrested and charged with assault because of our work.
Now, Investigative Reporter Chris Halsne digs deeper into other reported abuses inside Rainier.
Halsne says, “At that moment, while we were lying in the woods back there, videotaping mentally and physically challenged clients being abused, a longtime resident of the Rainier School for the disabled lay dying in a hospital bed with a broken neck.
We are about to show you why we are wondering if DSHS conducted a proper investigation into the death of Peter Bohnke
See http://www.kirotv.com/news/14643193/detail.html for the entire story.
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3.12
Autistic Traits: A Plus for Many Careers
From Lisa Jo Rudy,
Redefining the Workplace for Autistic Teens and Adults: Since when have passion, meticulous attention to detail, and lack of interest in office gossip been problems in the workplace? Since the workplace was defined as a 9-5 social setting! It's true that offices -- and the stock rooms at Walmart -- are "typical" work settings. But autistic people aren't typical. And neither are the careers for which they're ALREADY good candidates.
He Just Can't See the Forest for the Trees: It's a common trait among autistic people: they see the parts instead of the whole. It's a problem in some settings, but a terrific attribute if you're looking for... deep space anomalies (as an astronomer), unique cells (as a lab technician), differences among species (as a biological researcher), particular qualities of objects (as a gemologist, antiques appraiser, or art historian).
Her Only Friends Are Her Family: This trait may not get you invited to the prom. But it's a wonderful attribute if you're... a forest ranger; a self-employed writer or artist; a caretaker at an estate; a gardener or horticulturalist; or even a paleontologist (dinosaur scientist). After all, lack of interest in other people is not indicative of lack of interest in or ability to manage things, animals, or systems. And it's not easy to find a qualified person who's willing to spend extended periods on their own.
All He Cares About in the World Is... [Fill In the Blank]: If you've ever worked at museum, lab or university, you'll find worlds full of single-minded, passionate people. To an academic, their area of interest, no matter how small, is desperately interesting. The same is true of museum professionals and archaeologists, who spend their lives studying individual artifac